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[edit] What are we doing?

  • A the ic3-wiki semantic web application for patients (for Self management?)
  • A personal organizer with health applications.
  • A POHA: Or a Personal Online Health Assistant/Application. Poha from western India, made from flattened rice, is an easy-to-cook, nutritious snack.[[1]]
  • An application to allow patients to collect, organize their health experience, correlate it with diet and exercise and share it with others.

[edit] Our new goals

  • To develop something simple and useful that can encompass a personal organizer, a record keeper, with collaboration and analysis facilities.
  • To launch a software program and application aimed at gaining experience and notoriety by April 14th.

[edit] ToDo

Template:Todo Take a look at the android demos and see if anything comes to mind

Template:Todo collecting all use cases and ideas and keep them organized

Template:Todo target pharma in case android doesn't work out.

  • "so far, it seems, the drug industry has balked at the prospect of knowing so precisely what happens to their products after they reach the market."
  • "The pharmaceutical industry should be eager to improve the accuracy and efficacy of its treatments. After all, sometimes side effects can turn into blockbusters, most famously when Pfizer scientists learned that their hypertension treatment was causing erections in men, leading the way to Viagra."

[edit] Links

[edit] Aim

To capture, store and marking up (define) ideas, adding details (tagging), visualizing trends and concepts, and finding contributors (sharing) through a variety of methods.

  1. facilitating information capture: features to allow users to use text input, speech recordings captured through a cell phone (depending on available open source solutions) and wiki like markup using semantic wiki style capabilities.
  2. improving Information storage
  3. simplifying Information definition
  4. fostering sharing and collaboration
  5. allowing easy information visualization


From the halo extension project:

  1. enhancing wiki navigation - features to ease and speed up navigation and access to articles, as well as semantic data, in the wiki
  2. improving knowledge authoring - features to allow easy and expressive addition of semantic data to the wiki
  3. simplifying knowledge retrieval - features to query knowledge and access information stored in the wiki
  4. gardening the knowledgebase - features that allow users to detect inconsistencies and continuously improve the quality of the authored knowledge

[edit] Use cases

[edit] For patients

    *Use case name
    *Basic course of events
    *Alternative paths
    *Business rules
    *Author and date

[edit] 1. Patient involvement in setting research agendas

[edit] Version 1.0

[edit] Summary

Traditionally, patients and their families have two roles in health research: as research subjects, providing data at the request of researchers, and as fundraisers, supporting research and researchers. These roles are readily apparent in the areas of cancer and other chronic diseases. Growing evidence, however, suggests that health research agendas do not always reflect patients' priorities. Welfare et al. add to the evidence by eliciting patients' priorities for colitis research. Methods for bridging patients' views and research agendas range from social science to deliberative public debate. In the first of these, social researchers, such as Welfare et al., elicit and interpret patients' views and compare these with current research agendas. In the second, patients are supported and encouraged to engage in debates about research, whereby they bring their own interpretations and influence to the health research community. Organized chronic disease patient groups, with their current interests and alliances with research, are well placed to build on the work of Welfare et al., in partnership with researchers with the aim of planning research that meets the full range of their needs.

[edit] Goals

  • Ability for patients to capture an a research idea and organize it so other patient(s) can find it, and list them under their interests.
  • Ability to exchange research ideas patients want to advocate for or influence the research agenda.
  • Possibility to promote research ideas based on what other patients want done.
  • Research idea searches and summaries will be possible.
  • Patient groups will be able to support funding of trials and patient recruitment for chronic disease research.
  • Patient and public engagement will be further enabled in setting research agendas for health research more generally, particularly about the effects of treatment.
  • Patient priorities for disease research will have a forum for discussion.
  • Additional opportunities on how build on strategic alliances between patient groups, clinicians and researchers for more open debate about what research will be possible.

[edit] Actors

  • Individual patients
  • Patient groups and communities
  • Clinicians
  • Researchers
  • Pharma industry?

[edit] 2. ADHD Patients self-coaching parallel thinking repository

[edit] Summary

Hyperfocus is an intense form of mental concentration or visualization that focuses consciousness on a narrow subject, or beyond objective reality and onto subjective mental planes, daydreams, concepts, fiction, the imagination, and other objects of the mind.

From a neurodiversity perspective, hyperfocus is a mental ability that is a natural expression of personality. However, hyperfocus can also be regarded as a psychiatric diagnosis, as a distraction from reality and a symptom of attention deficit hyperactivity disorder (ADHD), adult attention-deficit disorder (AADD), or autism spectrum disorders.

Some people say that hyperfocus is an important element of meditation. In common parlance, hyperfocus is sometimes referred to as "zoning out." In sports, it is sometimes referred to as "being in the zone".

The term hyperfocus is not in common use among academics, and seldom appears in peer-reviewed articles. However, related terms such as concentration, absorption, and 'focused attention' are widely used.

A positive aspect of hyperfocus might be the ability to use detachment from ordinary mentality to create new approaches to familiar situations. It may also improve learning speed and comprehension.

On the other hand, it sometimes presents a challenge to common teaching and parenting techniques. Schools and parents generally expect obedience from children and reward them for it, but hyperfocused children do not always cooperate under these circumstances. This can be overcome with investments of time and effort by the teacher or parent, but it is not always possible to spend a lot of time focusing on one child in a typical classroom situation.

Psychiatry describes only the distraction aspect of hyperfocus, referring to ADHD as 'inattentiveness and impulsiveness'. Hyperfocus is not recognised by the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV-TR), and no article using the term appears in PubMed.

Besides hyperfocus, various special abilities have been suggested to occur in ADHD, including vigilance, response-readiness, enthusiasm, and flexibility. But current ADHD research does not recognize these characteristics. Greater creativity has also been suggested, but formal measures of this are no higher in children with ADHD than in control groups.

Nevertheless, psychiatric research suggests that there are several reasons for the persistence of the notion that people with ADHD have the ability to hyperfocus, such as the well-recognised comorbidity of ADHD with autism spectrum disorders, of which excessive focus is a part. Special abilities do occur in some ADHD people, so it is easy to generalize from this minority to the whole ADHD group. ADHD is sometimes regarded as a disorder that is remarkably common (affecting 4-8% of school age children), but primarily genetically determined.

Professional psychiatry does not completely discount the existence of hyperfocus, as many adults with ADHD attribute accomplishments in their lives to this mental ability. As ADHD in adults is a relatively new area of learning in comparison with the condition in children, many clinicians feel that hyperfocus is an aspect of adult ADHD which is not well understood and merits more thorough research.

[edit] Goals

  • Allow ADHD and ADD patients to stay in the hyperfocus zone.

[edit] Actors

  • ADHD patients
  • ADD patients
  • ADD coaches

[edit] 3. Patients virtual coach to help them prepare for their health consultations

[edit] Summary

"The Virtual Coach will guide patients through a series of common questions about the experience and management of pain related to a particular health issue. The initial content of this tool will focus on questions that women with breast cancer have about pain related to cancer eventually expanding to include questions relevant to individuals with other cancer types and pain of other etiologies. The database of questions will reflect questions of interest to patients based on interviews conducted with patients and health professionals.

The Virtual Coach will prompt patients to select and prioritize questions that are most relevant to them at that time. It will offer standardized responses to each of the questions in the database and include links to authorized resources with further information. The Virtual Coach will also help patients prepare for routine questions that they will likely receive from their health professional during a typical pain assessment. The Virtual Coach will prompt patients to prepare answers to a series of questions that their health professional will likely ask them about their pain. This list of questions will be developed in consultation with health professionals with expertise in pain management. We envision that use of this online system will enable a better exchange of information during consultations, improve the ability of patients and clinicians to target and address important issues, lead to more efficient use of consultation time, and ultimately to better health outcomes."

[edit] Goals

  • Help patients create lists
  • Help patients make priority questions
  • Help patients organize strategic plan for health consultation

[edit] Actors

[edit] For researchers

[edit] Intelligent systems to update systematic reviews published on open access journals

[edit] Summary

For systematic reviews: Part of the work of creative researcher is tedious and repetitive (why?). if intelligent agents could refresh clinical reviews with no human input, finding medical evidence from the literature, synthesizing the results of the many studies published everyday, and and then sharing it through publications

Read this:

[edit] Goals

[edit] Actors

  • Researchers (Principal investigators and co-investigators)
  • Research associates and assistants
  • Editors
  • Publishers

[edit] Memorable conversations

  • David said: "Don’t mention the project that shall not be named"
  • Carlos said: "I'll do my best"
  • David Mason said “web 2.0 is so yesterday, massive correlation, collaboration, is the way now”
  • Carlos said: "But we need to eat..."
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